broken

The good news is that the tumor they radiated responded to treatment.  The bad news is that at least five more popped up in my liver over the last six weeks, some as big as 2cm (that’s really fast and furious, folks…going from 0 to 2 in that span of time is impressive…proving once again that I am the best at growing cancer…not something I’m likely to put on my resume, though).  Unfortunately, it’s fairly devastating news.  I mean, we understood that Stage IV breast cancer was incurable and that this is what would eventually take me out (save getting hit by a bus…why is that always the example?), but some more time between the first round of mets and this one would have been nice.  We were pinning our hopes on years, and this puts us back in the ‘months’ category.  The average lifespan after a mets diagnosis of metaplastic carcinoma is eight months, so we weren’t kidding ourselves by thinking that my diagnosis wasn’t serious, just hopeful that I would be an anomaly…  I still might be, and research and advancements in the field of oncology have come a long way in recent years (i.e. since studies were published throwing out numbers like eight months…), especially with directed therapies based on gene sequencing, so we’re keeping hope alive.

The plan is to move forward with systemic treatment (it’s all that’s left since surgery and radiation are not viable options at this point…), which means some sort of chemo/targeted therapy.  There are a couple promising clinical trials I would have access to here in Madison, and I did finally get authorization for a consult/second opinion at MD Anderson Cancer Center in Houston where there are oncologists that specialize in metaplastic breast cancer, so we’re keeping our fingers crossed that we will hit on something that knocks these tumors back, or at least keeps them stable for as long as possible.

It tends to take me a few days/weeks to fully absorb the reality each time we get bad news (not like Kevin, all the feels hit him straight away…give him a hug if you see him!).  I react initially feeling battle ready, then the sadness and anger settle in, and finally the acceptance that allows for some peace and contentment.  I have been fighting in recent weeks/months to regain a foothold in life outside my cancer diagnosis and was back to feeling happy and alive for the first time in a looooong while.  More like Jenn again…living with cancer, but LIVING.  I was able to accept the things that would likely never come to pass, like growing old and gray with Kevin in retirement or meeting my future grandchild(ren).  Being able to view these eventualities with less emotion and more of an analytical mind has been a difficult process, but also liberating.  Of course with a new diagnosis it seems all the sentiment comes bubbling back…it’s hitting me in fits and starts now (will I get to see Maggie graduate high school?), but will no doubt overwhelm me in the near future and I’ll have myself a little breakdown.  I’ll keep ya’ll posted about the time and date for the big ol’ pity party (bring tequila!).

Bah…the ups and downs, the uncertainty, feeling you have no control…this is cancer.  Like Kevin said, we’re feeling a bit broken right now.  I imagine if you are reading this you feel similarly, and I’m just so sorry we all have to go through this because it’s no damn fun.  The seriousness of my medical condition has hit home for Maggie and she’s feeling pretty out of sorts right now, too (as long as you’re handing out hugs…if you see her, squeeze her!).

But, hey, I’m not dead yet…and that’s no small thing!   Keep on keepin’ on.

Boo

This guy says FUCK YOU cancer!

Made it through a whole post without an emoji 😀  Nope.

Advertisements
This entry was posted in Uncategorized. Bookmark the permalink.

9 Responses to broken

  1. Natalie says:

    Fucking cancer. No words other than I’ll be thinking of you.

    Like

  2. Eric says:

    You’ll get a big fat hug when I see you in a few minutes. We’re with you all the way. Once again… fuck cancer.

    Like

  3. Liz Falendysz says:

    FUCK. I have been lying to myself about your situation since you found out about the first liver mets. A world without you seems impossible. I still can’t bring myself to think that is possible, not on 8 months, not in 8 years.

    Like

  4. Ed Steele says:

    Thinking of you and Ke in and Maggie

    Like

  5. Sarah brodnick says:

    Big hug from us!!

    Like

  6. Angie D says:

    https://www.fredhutch.org/en/news/center-news/2014/10/stage-4-metastatic-misunderstood-breast-cancer.html
    A medium but good read for the entire world.
    I don’t understand a lot of things in this life.

    I wish…so many things….

    Like

  7. Jane Lambert says:

    Jenn, I send big hugs to you, Kevin, and Maggie, and I’m wishing you the very best for your trip to M.D. Anderson. Thanks for keeping us posted. I hope you can feel the love my family and I are sending to your family and you.

    Like

  8. dromens says:

    A ton of bricks. Love you lady.

    Like

  9. Randi Hill says:

    Fuck – can I just say how much I hate cancer?
    I love you and love being your aunt – you are such an amazing human woman,
    Strong and smart and wise and funny and open hearted- I am so proud of you and so broken hearted that you might not be on this earth nearly long enough – will try to arrange coming up soon to pass out and receive hugs to all who want them, fierce niece!! In the meantime, I hear there’s a company that delivers great icecream to your door if that will help for starters….Aunt Randi
    Ps- if you feel up to a little travel this summer- come hang at
    The river and let us spoil you- tea or tequila -whatever baby wants
    Baby gets!!

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s