Our European vacation was a success! A good mix of fun and excitement, relaxation and kicking back. Walking, biking, hiking…good eats and great beach volleyball! Hoping to enjoy more travel and new sights, both near and far, once I’m feeling better 😀
I’ve spent hours on the phone with Navitus over the last couple weeks, all to no avail. They are still denying the medication, everolimus, identified by several specialists and genetic sequencing as having the best chance of extending my life. I’m not going to rehash all the details because it just pisses me off and I’m tired of dealing with the health insurance version of soulless white walkers. Good news is that GHC pretty much immediately approved my oncologist’s request to receive temsirolimus, the most closely related MTOR inhibitor to everolimus available, it will just be in IV form instead of oral. So this coming Tuesday I am back in the chemo bay to begin infusions of DAT (Doxil, Avastin, Temsirolimus) every three weeks, but have to go in once a week for the temsirolimus. It’s none too soon for me, as the tumors continue to grow unabated (in addition to my spine and hips, new ones now in my ribs, skull, and femur…plus I’ve palpated a couple new lumps on the left side of my chest, which I suspect are local recurrences from the primary tumor, so even more cancer fun!), which is causing significant pain. I have been taking ibuprofen every morning along with a low dose of twice daily extended release oxycodone, which together definitely take the edge off, but it still takes me a couple hours each morning to feel human enough to ambulate and get out of the house. Bah, stoopid cancer!
We are settling back into Segoe living and have most of the boxes unpacked! Still a ways to go with projects and organizing, plus there’s a full storage unit to be cleared out, but we’re chipping away a bit each day (thanks to Brunner girls for helping out so much on this front!!!). I have been quilting again, which feels great…like hanging out with an old friend you haven’t seen for a while but everything just falls into place when you greet each other again ❤ I make sure to find a little time every day to spend with my sewing machine and it feels sooooo good!
I’ve also posted some new entries in the Lotsa Helping Hands calendar (http://lotsahelpinghands.com, group name is jeboobuddies), in case anyone is looking for some extra chores in their life 😉
Love and peace,